Involving patients in developing, refining and testing the IMP2ART “Living with Asthma” website (ID 359)
University of Edinburgh
Funding: This abstract presents independent research funded by the National Institute for Health Research under its Programme Grants for Applied Research Programme (Ref: RP-PG-1016-20008). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care. This work is carried out with the support of the Asthma UK Centre for Applied Research [AUK-AC-2012-01 and AUK-AC-2018-01].
Abstract
Aim We aimed to work together with people living with asthma to create a patient-centred website to support asthma self-management as part of the IMP2ART (IMPlementing IMProved Asthma self-management as RouTine) research programme.Methods: Patient and public involvement (PPI) colleagues from the IMP2ART patient advisory group and the Asthma UK Centre for Applied Research worked together with the IMP2ART team to design content that is relevant and engaging for people with asthma. We held meetings to discuss themes, content and context, and a workshop was recorded to create videos from the patient perspective on their experiences and tips for living with asthma.
Results Patient colleagues provided guidance on their experiences and needs to create a patient-centred website for patients and healthcare professionals. Their suggestions on necessary content ensured we were providing information relevant to people living with asthma. Our one-hour workshop, delivered on Zoom by our patient lead, created five patient-centred videos: Patients' tips for managing your asthma; Essential to have an annual review; Making the most of your asthma review; Preparing for your asthma review; Personalising the action plan. To increase accessibility, all videos have subtitles and transcripts and one of our members, who uses a document reader, confirmed website accessibility for people with visual impairments. We have included links to asthma actions plans available in eight non-English languages. Patient colleagues also provided advice and quotes for an infographic on “Where to go for information about my asthma”. Three of the most accessed webpages feature patient colleagues’ content with the most popular being ‘Managing your asthma’– 22% of all users accessed this page.
Conclusions Working with patient colleagues to build this website ensured it is appropriate and engaging for people living with asthma. PPI is central to making sure we get things right for those living with asthma.
Conflicts of interest: None
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